A few weeks ago, one of my officemates asked me to help her
word an email. She pointed to her screen and asked if she was getting her point
across. I responded, “oh please, you know there’s no way I can see that!” She read
the questionable wording out loud, and I provided my feedback.
She then chimed in, “isn’t it a compliment I always forget
about your vision loss?” I paused, choosing my words carefully, and shared that
although it is flattering that she does not see me as defined by my disability,
my vision loss is a core piece of my identity that impacts how I live my life.
My vision loss is so central to my daily experience; it seems unfathomable that
it is easily and frequently forgotten.
Many friends and family members have shared how unnoticeable
my vision loss is to them. This is said wholeheartedly as a compliment.
Although I recognize the good intentions, I no longer view this as a
compliment. Candidly, I find it offensive. Let me explain.
I haven’t always felt this way. A few years ago, I would
have enthusiastically responded “it is a huge compliment that you don’t see me
as disabled!” I never aspired for my vision loss to become a part of my
identity. Passing as sighted was a badge of honor.
Still, I continue to be sensitive to the ways in which my
vision loss is apparent. I feel self-conscious when I spill, make jokes when I
run into things, and try desperately to make it appear as if I’m making eye
contact, even if I can’t see your face. Embedded in these lingering
insecurities, there is a piece of me that is flattered when you say this is
unnoticed. In that moment, I feel like perhaps I’m not that different; perhaps
I can pass as sighted.
At the same time, I am, and will likely always be, disabled.
I strive to be transparent about my vision loss, which requires me to put my
shame aside, ask for help when I need it, and avoid minimizing the consequences
of low vision. Confidence and comfort in my body’s abilities requires me to
move past the brief glory of passing as sighted. It isn’t glorious to pretend
to be someone I’m not, and it isn’t a compliment that you see me as someone I’m
not. I am enough, even if I spill and run into things and cannot make eye
contact. When you tell me that it’s a compliment that you don’t notice or
remember these aspects of me, I receive the message that it is not flattering
to appear disabled.
I challenge the notion that passing as able-bodied is
flattering. I want it to be flattering to recognize the diverse spectrum of
human ability. Maybe one day, I’ll be
afforded the compliment, “I could never forget your disability because it is a
core part of your identity. It would be like forgetting your name, race, or
gender. Your difference in ability makes you who you are, and I will forever
notice you.”
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